Resources for All Pain Conditions
By Brianna Shortt, Rn.
founder of Chronic Pain Hope
Below you will find a comprensive list of resources for all chronic pain conditions. This guide includes resources from organizations, websites, apps, books, podcats, youtube, and more.
Organizations
An organization that helps clients eliminate or significantly decrease their chronic pain through targeted psychotherapy techniques. These therapy techniques include cognitive behavioral therapy, psychodynamic therapy, ISTDP, hypnotherapy, guided meditation, mindfulness training, and dual brain therapy.
American Academy of Pain Medicine
The primary organization for physicians practicing pain medicine in the United States.
American Chronic Pain Association
A non-profit organization that facilitates peer support, education, and hope for those with chronic pain and those treating chronic pain.
Chronic Pain Research Alliance
An organization that provides education and promotes research on chronic pain. The organization advocates for those struggling with Chronic Overlapping Pain Conditions.
A non-profit organization with a mission to improve clinical dialogue by closing the knowledge gap between clinicians and patients. It provides tools and confident clinical interactions.
A non-profit organization that aims to empower, educate, connect, and advocate for people living with chronic pain. It connects people with chronic pain resources.
NORD (National Organization for Rare Diseases)
An independent patient advocacy organization that represents all individuals and families affected by rare diseases in the United States. NORD provides information and resources for those with rare diseases.
A virtual team that works together to treat your chronic pain. They offer a 12-week program that includes virtual sessions with a health coach, physician, and a therapist. They also have an app called Pain Navigator that includes physical therapy exercises, medical education, wellness strategies, and mindfulness exercises.
Websites
Provides education and updated news on chronic pain.
A non-profit with the mission to end chronic pain and the opioid crisis by advancing awareness, diagnosis, and treatment of chronic pain.
www.painreprocessingtherapy.com
Provides education on pain reprocessing therapy and how it can be used to effectively treat chronic pain.
Provides education and resources on Mind-Body Medicine.
Find the top experts for any health condition
A database of clinical studies conducted around the world
Work with a chronic pain coach or take an online course to learn about decreasing chronic pain and taking control of your health.
Apps
Takes a biopsychosocial approach to treating chronic pain. Includes pain education, guided meditations, brain exercises, journaling prompts, and more. This is the #1 app for chronic pain.
A meditation app that includes guided meditations, yoga, journaling, breathwork exercises, and daily affirmations.
Offers pain and medication tracking, mindfulness, physical therapy exercises, educational resources, and community support.
A meditation app that offers guided meditations, sleep stories for falling asleep, relaxing music, and masterclasses on mindfulness.
A guided pain relief program that provides education on pain, tips for dealing with triggers, cognitive behavioral therapy, meditations, and more.
A health tracking app that allows you to enter your mood and symptoms. It tracks what impacts your sleep and you can set custom reminders for your medications.
A platform for people with chronic pain, insomnia, and anxiety. It provides science-backed workshops, tools, and resources that help you manage your nervous system. It uses virtual reality to treat chronic pain and other conditions.
Wave: Health and Symptom Tracker
Allows you to record your symptoms and emotions. You can track your daily activities and keep your doctor up to date.
A digital health program designed to reduce pain. It includes a message center where you can communicate with your coach, a weekly focus area, and customized care kits that allow you to focus on particular aspects of your recovery plan.
Books
“The Way Out” by Alan Gordon, LCSW
Alan Gordon is a psychotherapist who went through years of chronic pain. He developed pain reprocessing therapy, a form of mind-body medicine rooted in neuroscience. This form of therapy has transformed the lives of thousands of people. Read this book to learn how pain reprocessing works and why you should use it.
“Unlearn Your Pain” by Howard Schubiner, MD and Michael Betzold
This book offers science-based information on the mind-body connection and a guided program on recovery from mind-body syndromes.
“They Can’t Find Anything Wrong” by David Clarke, MD
In a lot of patients, the cause of the illness cannot be determined due to all the tests coming back negative. These illnesses are most likely caused by life stressors that produce very real symptoms but no physical damage. This book talks about how these types of illnesses can be successfully treated.
“Quiet Your Mind and Get to Sleep: Solutions to Insomnia for Those with Depression, Anxiety, or Chronic Pain” by Colleen Carney, Ph.D.
This is a workbook that uses cognitive behavioral therapy to treat insomnia. Cognitive behavioral therapy is often more effective and has longer-lasting effects than sleeping pills.
“Chronic Pain Rehabilitation: Active Pain Management that Helps You Get Back to the Life You Love” by Evan Parks, Psy.D.
This book has a step-by-step process for reducing pain and moving forward with your life. The treatment strategies are based on neuroscience and pain psychology.
“Freedom from Pain: Discover Your Body’s Power to Overcome Physical Pain” by Peter A. Levine, Ph.D. and Maggie Phillips, Ph.D.
A lot of people with chronic pain have unresolved emotional traumas held within the body. This book focuses on addressing those traumas and calming the body’s overreactive “fight” response to pain.
Podcasts
Alan Gordon (Founder of the Pain Psychology Center) and Alon Ziv talk about the experiences of real chronic pain sufferers and provide techniques for healing based on neuroscience.
Interviews with physicians, researchers, and ordinary people who talk about the power of the mind-body connection.
Yale Professor Dr. Laurie Santos has studied the science of happiness and found that many of us are doing the exact opposite of what will bring us happiness. She uses this podcast to teach people about the latest scientific research and share stories that will change the way you think about happiness.
Created by the American Academy of Pain Medicine. Each episode shares the latest innovations and practical applications for treating chronic pain.
YouTube
Let’s Talk About Pain with Dr. Andrea Furlan
A YouTube channel dedicated to chronic pain education. Dr. Andrea Furlan is a physician, scientist, and professor at Toronto, Ontario, Canada. Her specialty is Physical Medicine and Rehabilitation.
Autoimmune Disorder Resources
Organizations
American College of Rheumatology
A non-profit that advances rheumatology through programs of education, research, and advocacy.
An organization that empowers solutions in the diagnosis and treatment of autoimmune diseases through research, education, and awareness. They provide a long list of resources and a support group.
An organization with the goal to form a community to support families and caregivers dealing with autoimmune disorders. The organization advocates for the use of functional medicine to treat autoimmune disorders.
An organization that has created a community for people with autoimmune diseases. The organization provides recipes and meal plans as well as education and updates on research.
An organization that provides community and private coaching to those with autoimmune disorders. Community coaching includes a chronic wellness course, two coaching sessions each month, and a monthly movement/meditation class.
Global Health Living Foundation
An organization dedicated to improving the lives of those with autoimmune disorders by elevating patient voices, providing education, and patient-centered research.
A non-profit organization that aims to ensure the widespread adoption of functional medicine. Functional medicine determines why and how an illness occurs and restores health by addressing the root cause of the problem.
Apps
An app that used science-based activities and cognitive behavioral therapy to help people overcome negative thoughts. It can help reduce anxiety, burnout, and grief.
An app that has created a community for people struggling with different health conditions. People can meet friends with the same conditions and discover health tips and advice.
My Life
An app on how to live a healthy lifestyle. The app incorporates mindfulness, guided workouts, and nutrition tracking.
A meal planning app with lots of recipes that can be personalized for your tastes and lifestyle.
Talkspace
A self-directed therapy app with topics like mental health foundations, depression, anxiety, relationships, burnout, and body image. Live classes with therapists are offered.
Books
“Autoimmune Disease and Their Environmental Triggers” by Elaine A. Moore
This book is a comprehensive resource for people with autoimmune diseases. It covers heavy metals, hormones, organic solvents, medications, and infectious agents. It also covers the immune system and genetic factors.
“The Autoimmune Epidemic: Bodies Gone Haywire in a World Out of Balance and the Cutting Edge Science that Promises Hope” by Donna Jackson Nakazawa
In this book, the author examines almost 100 autoimmune disorders and writes about environmental triggers, preventions, treatments, and cures.
“An Elegant Defense: The Extraordinary Science of the Immune System: A Tale in Four Lives” by Matt Richtel
The author investigates the immune system and the secrets of health.
“The Autoimmune Wellness Handbook: A DIY Guide to Living Well with Chronic Illness” by Mickey Trescott, NTP and Angie Alt
A comprehensive guide to living a healthy lifestyle with an autoimmune disease. The authors focus on seven steps to recovery: inform, collaborate, nourish, rest, breathe, move, and connect.
“You are Not Your Pain: Using Mindfulness to Relieve Pain, Reduce Stress, and Restore Wellbeing- An Eight Week Program” by Vidyamala Burch and Danny Penman
This book includes eight meditations that take 10 to 20 minutes a day. These meditations can help reduce pain, anxiety, stress, exhaustion, irritability, and depression.
Fibromyalgia Resources
Organizations
National Fibromyalgia Association
A nonprofit organization dedicated to providing support and resources to those with fibromyalgia. The organization offers education, seminars, and a list of doctors that specialize in fibromyalgia treatments.
An organization dedicated to finding the cure for arthritis. They provide resources, advocacy, and community connections.
Websites
An online community for people with arthritis and their caregivers. This website offers education, support, advocacy, and patient-centered research. Their goal is to inspire, empower, and support arthritis patients.
A guide to living a healthy lifestyle with arthritis.
An educational resource for both medical professionals and patients.
Apps
An app with appointment and medication reminders. It allows you to track your health records on your phone and check your medications for any interactions.
An app that allows you to track your symptoms and the effectiveness of medications and treatments. It provides education on medical and non-medical treatment options. You can also see how others with similar conditions are managing their pain.
Books
“Reverse Therapy: Chronic Fatigue, Fibromyalgia, and Related Disorders” by John Eaton, PhD
This book goes over the bodymind healing process. It explains the stress-disease connection, the role of emotions in health, and how anxiety interferes with health.
“Mayo Clinic Guide to Fibromyalgia: Strategies to Take Back Your Life” by Andy Abril, MD and Barbara K. Spruce, PhD LP
This guide to fibromyalgia uses anecdotes from real cases along with advice from the leading experts in rheumatology and chronic pain.
“Healing Fibromyalgia: Why Everything Hurts and How to Feel Well Again” by David Edelberg, MD
Dr. David Edelberg has treated over 1,600 women with fibromyalgia using a six-week plan with step-by-step instructions. He explains how fibromyalgia causes your body to go into a state of protection and fear. Your body attempts to form an armor that does more damage than good.
Podcasts
“Fibromylagia Podcast” by Tami Stackelhouse
This podcast is designed to educate and provide hope to those struggling with fibromyalgia. The ultimate focus of this podcast is to help you feel better. It includes interviews with experts, before and after stories, and episodes where Tami Stackelhouse will answer questions from listeners.
YouTube
“Let’s Talk About Pain” w/ Dr. Andrea Furlan
Educational videos on chronic pain.
Psoriatic Arthritis Resources
Organizations
A nonprofit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those with psoriasis. They provide education, resources, and community. Join Psoriasis One to One for peer support.
American College of Rheumatology
A non-profit that advances rheumatology through programs of education, research, and advocacy.
An organization dedicated to finding the cure for arthritis. They provide resources, advocacy, and community connections.
A nonprofit that provides resources for those with arthritis. These resources include a helpline, an online virtual assistant, an online community, education, and people in your area that you can meet with in-person for support. Volunteer opportunities are listed on the site.
International Foundation for Autoimmune Arthritis
An organization dedicated to advancing education, advocacy, and research for those impacted by autoimmune arthritis diseases. This is done through peer-led guidance, collaboration, and resources.
Websites
A Health Union community that promotes education and provides resources for psoriatic arthritis.
Apps
An app that supports people with psoriasis. You can connect with people who have similar health concerns, get information from health experts, and share your experiences with others.
An app that allows you to track how you feel, monitor your health, and improve your well-being.
Books
“Psoriatic Arthritis” by Dafna D. Gladman, MD and Vinod Chandran, MD, PhD
This book is a guide for people with psoriatic arthritis. It goes over the causes and clinical features, as well as treatment and management strategies.
Podcasts
This podcast was created by the National Psoriasis Foundation to educate those who are living with psoriasis and psoriatic arthritis.
This podcast was created by the Arthritis Foundation. It is hosted by patients, for patients. Topics that are covered include nutrition, emotional wellbeing, pain management, physical activity, and more.
This podcast was created by the American College of Rheumatology. It covers trends in clinical practice, issues affecting rheumatology professionals, and the changing landscape of the rheumatology field.
YouTube
Educational videos on different types of autoimmune disorders.
Educational videos on different types of arthritis.
Educational videos on different types of arthritis and autoimmune disorders. Videos in English and Spanish.
Systemic Lupus Erythematosus
Organizations
A national voluntary health organization with a goal to improve the quality of life of those with lupus through research programs, education, support and advocacy. They are working to reduce the amount of time it takes to receive a diagnosis and ensure that people with lupus have access to safe and effective treatments.
American College of Rheumatology
A non-profit, professional association committed to advancing the specialty of rheumatology. This is done through education programs, research, advocacy, and supporting people with arthritis, musculoskeletal, and rheumatic conditions.
An American voluntary health organization whose mission is to find better treatments and to prevent and cure lupus.
A national voluntary organization dedicated to improving the lives of people living with systemic lupus erythematous through advocacy, education, public awareness, research, and support
Websites
A site dedicated solely to lupus trials. This site helps people learn about clinical research, provides the latest news and results, and updates on the newest trials that people can join.
A Health Union community that educates and connects people with systemic lupus erythematous.
A digital platform that provides the lupus community with the most recent news and information. Read community perspectives from patient and caregiver columnists.
A social network for those living with lupus. Connect with others who have lupus, get emotional support, and gain practical advice and insights.
Provides programs and support for those living with lupus. They collaborate with other government and lupus organizations to improve quality of life and find a cure for lupus.
Apps
Predicts ultraviolet radiation levels
Takes a biopsychosocial approach to treating chronic pain. Includes pain education, guided meditations, brain exercises, journaling prompts, and more. This is the #1 app for chronic pain.
A symptom tracker app that helps you find triggers and treatments. It also has a community where you can share advice with people who have the same conditions.
Books
“The Lupus Book” by Dr. Daniel Wallace
Dr. Daniel Wallace is one of the top doctors for systemic lupus erthematosus. His 6th edition of the book covers new drug information and newly discovered information about the pathology of lupus. This book was written to help people with lupus manage the disease and have a better quality of life.
“The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” by Donald E. Thomas Jr.
This books covers how every body system can be impacted by lupus and gives practical advice on how to cope with the disease. The book provides information on diagnostic methods, medications, when to seek medical attention, lupus and pregnancy, complementary and alternative medicine, infections, and cancer.
“Despite Lupus: How to Live Well with a Chronic Illness” by Sara Goorman
Learn how your lifestyle choices contribute to your illness and how you can make changes to improve your health. The writer describes how to deal with the physical and mental limitations of lupus, insights on how to work with doctors, exercises to help with stress elimination, and more.
Podcasts
The Expert Series by Lupus Foundation of America
An educational podcast featuring leading lupus experts. These experts offer invaluable insight on a variety of topics that can help you better manage the disease.
YouTube
Educational videos on lupus
Migraine
Organizations
A nonprofit organization that promotes research, advocacy, and awareness for migraine. Their mission is to mobilize a community for patient support and advocacy while driving research that leads to advances in migraine treatment. They have also created an online community called Move Against Migraine.
An organization that promotes and invests in research across the whole spectrum of brain diseases. They believe that when they cure one of these diseases, they will cure many diseases.
A nonprofit organization with the goal of curing headaches. They are pursuing this goal through awareness, advocacy, education, and research.
A charity organization dedicated to helping people with migraine through information, support, awareness, funding, and promoting research. They have funded over 140 medical research projects and hold an international symposium to bring together the world’s leading experts on migraine.
Association of Migraine Disorders
An organization that strives to expand the understanding of migraine by supporting research, education, and awareness. They created Research is Hope as a source of funding for migraine research.
Websites
A Health Union community that provides education and community for those with migraine. They have a medical review board that ensures that all the information covered in forums and posts is medically accurate.
This is a blog written by Kerrie Smyres. She has lived with migraine and headaches for over 30 years and uses this blog to share her experiences and what she has learned about migraine over the years.
Apps
Takes a biopsychosocial approach to treating chronic pain. Includes pain education, guided meditations, brain exercises, journaling prompts, and more. This is the #1 app for chronic pain.
A tool for tracking your headaches, their severity, duration, and triggers. Receive daily information that helps you get your symptoms under control.
An app that allows you to track your headaches and triggers. You will receive a personal analytical report that will help you get to know your migraine and manage it better.
Migraine Buddy: Track Headache
An app that helps you identify patterns in your migraine, share experiences with others who have migraine, and use personalized coaching plans developed by experts.
Books
“Migraine: Find My Own Way Out” by Sara Riley Mattson
The author tried tradition medical treatments for her pain and then she tried her own approaches. She describes her experiences and how she was able to find her way out of despair.
“The Migraine Relief Plan” by Stephanie Weaver
Wellness coach, Stephanie Weaver, walks readers through a step-by-step plan of reducing their migraine symptoms. This is an eight-week plan that involves eating trigger free foods, sleeping better, and practicing relaxation techniques.
“The Migraine Brain” by Dr. Carolyn Berstein
The author is a neurologist and migraine sufferer. She uses her own experiences and expertise to explain migraine and make recommendations on how to manage the disease.
“Minding the Body, Mending the Mind” by Joan Borysenko, Ph.D.
The author helps readers discover the mind-body connection and how to cope with chronic diseases.
Podcasts
Informative discussions with headache experts on the newest treatments, research, lifestyle recommendations, and personal stories.
Podcast that explores migraine through the perspectives of patients, advocates, caregivers, health professionals, and researchers.
In-depth stories of people living with migraine. Allows people with migraine to feel connected and offer practical advice.
Podcast where headache specialists discuss everything migraine and headache related. It is meant to provide support and advice to those suffering from migraine.
YouTube
Channel created by the Association of Migraine Disorders. This channel was created to educate both those who practice medicine and people who have migraine.
A YouTube Channel that provides step-by-step training on headaches and how to have more pain free days.
An educational resource for migraine sufferers.
YouTube channel created by the American Migraine Foundation with the goal of educating and supporting people who have migraine.
Let’s Talk About Pain w/ Dr. Andrea Furlan
Education videos on chronic pain.
Osteoarthritis
Organizations
A leading organization dedicated to supporting individuals with arthritis, including osteoarthritis. The website offers comprehensive information about osteoarthritis, treatment options, self-management techniques, exercise programs, and community support. They also organize events and provide access to local resources.
American College of Rheumatology
A professional organization that provides education and resources for both healthcare professionals and individuals with arthritis. Their website offers patient education materials, treatment guidelines, and information about ongoing research and clinical trials related to osteoarthritis.
National Institute of Arthritis and Musculoskeletal Skin Diseases (NIAMS)
Offers in-depth information and research on osteoarthritis.
An international, digital community for arthritis patients worldwide. It provides education, support advocacy, and patient-centered research.
Websites
Provides education on the different types of arthritis. Site includes a blog with updated information.
A Canadian organization dedicated to curing arthritis. They are fighting arthritis through research, advocacy, innovation, information, and support. It is Canada’s largest charitable funder of arthritis research.
A blog created by Julie Cerrone who is a health coach and yoga instructor. She writes a blog about her personal health experiences with psoriatic arthritis, depression, anxiety, GI issues, and more. Her blog is titled “It’s Just a Bad Day, Not a Bad Life”.
Apps
Takes a biopsychosocial approach to treating chronic pain. Includes pain education, guided meditations, brain exercises, journaling prompts, and more. This is the #1 app for chronic pain.
A guided pain relief program that provides education on pain, tips for dealing with triggers, cognitive behavioral therapy, meditations, and more.
Monitors your health and provides educational video tutorials for physical therapy. Provides daily tips to decrease pain. Allows you to track your movement and activity goals.
Free workout app for yoga
Books
“Living with Osteoarthritis: A Complete Guide to Understanding and Coping with Osteoarthritis” by Cheryl Koehn and Taysha Palmer
A comprehensive overview of osteoarthritis including treatment options and self-management strategies.
“The Arthritis Cure: The Medical Miracle that Can Halt, Reverse, and May Even Cure Osteoarthritis” by Jason Theodosakis, MD, MS, MPH; Brenda Adderly, and Barry Fox
Explores potential lifestyle changes, supplements, and exercise regimens that can help manage osteoarthritis symptoms
Podcasts
Experts talk about topics like eating right, being physically active, pain management techniques, and more.
Arthritis At Home
Listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists, and health economists.
YouTube
Let’s Talk About Pain w/ Dr. Andrea Furlan
A YouTube channel dedicated to chronic pain education. Dr. Andrea Furlan is a physician, scientist, and professor at Toronto, Ontario, Canada. Her specialty is Physical Medicine and Rehabilitation.
Rheumatoid Arthritis Resources
Organizations
A leading organization dedicated to supporting individuals with arthritis, including osteoarthritis. The website offers comprehensive information about osteoarthritis, treatment options, self-management techniques, exercise programs, and community support. They also organize events and provide access to local resources.
American College of Rheumatology
A professional organization that provides resources and information for both healthcare professionals and individuals with arthritis. Their website offers patient education materials, treatment guidelines, and information about ongoing research and clinical trials related to osteoarthritis.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Offers in-depth research and information about osteoarthritis
An international, digital community for arthritis patients worldwide. It provides education, support, advocacy, and patient-centered research.
Rheumatoid Arthritis Foundation
A non-profit organization that provides education and support to those living with rheumatoid arthritis.
Rheumatology Research Foundation
This is the largest private funding source for rheumatology research and training in the US. They have volunteer opportunities for people who would like to support the cause.
Websites
Provides education on the different types of arthritis. There is education on all of the different treatment options. There is a blog with updated information.
www.arthritis.ca https://arthritis.ca/
A Canadian organization dedicated to curing arthritis. They are fighting arthritis through research, advocacy, innovation, information, and support. It is Canada’s largest charitable funder of arthritis research.
A health community where you can find support from people who have similar or the same conditions as you. It is a safe space to share your experiences and it is free to members.
The world’s largest social network for health. This site can be used to get information, support, and tools that have been shown to improve health outcomes.
Apps
Takes a biopsychosocial approach to treating chronic pain. Includes pain education, guided meditations, brain exercises, journaling prompts, and more. This is the #1 app for chronic pain.
This app offers clinically proven treatment for chronic joint pain. This includes treatments for back, shoulder, hip, knee, neck, and hand pain. The app includes a personal licensed physical therapist, an individualized exercise program, interactive lessons, and progress tracking.
Bezzy RA: Rheumatoid Arthritis
A free online platform that creates a community for those with rheumatoid arthritis. You can gain advice and support through group discussions and discover the latest RA news and lifestyle articles.
Books
“The First Year: Rheumatoid Arthritis: An Essential Guide for the Newly Diagnosed” by M.E.A. McNeil
This book offers practical advice and guidance for individuals who have been recently diagnosed with rheumatoid arthritis. It covers topics such as understanding the condition, treatment options, lifestyle adjustments, and coping with the emotional impact of the diagnosis.
“Living with Rheumatoid Arthritis” by Tammi L. Shlotzhauer, MD
Written by a rheumatologist, this book provides comprehensive information about rheumatoid arthritis, including its causes, symptoms, treatments, and management strategies. It offers practical advice for living well with RA and empowers readers with knowledge about their condition.
“The Autoimmune Solution: Prevent and Reverse the Full Spectrum of Inflammatory Symptoms and Diseases” by Amy Myers, MD
While not exclusively about rheumatoid arthritis, this book discusses the role of autoimmune conditions in causing inflammation and provides insights into dietary and lifestyle changes that can help manage autoimmune diseases, including RA.
“The Rheumatoid Arthritis Cookbook: Anti-Inflammatory Recipes to Fight Flares and Fatigue” by Caitlin Samson
This cookbook focuses on providing anti-inflammatory recipes that can be beneficial for individuals with rheumatoid arthritis. It offers guidance on incorporating foods that may help manage inflammation and support overall health.
“Rheumatoid Arthritis: Plan to Win” by Cheryl Koehn and John Esdaile
Co-authored by a rheumatoid arthritis patient and a rheumatologist, this book provides practical advice and strategies for managing RA effectively. It covers topics such as medications, exercise, nutrition, and emotional well-being.
“The Everything Health Guide to Arthritis: Understand Symptoms, Relieve Pain, and Maintain Mobility” by Carol Eustice
While not solely focused on rheumatoid arthritis, this book offers a comprehensive overview of various types of arthritis, including their causes, symptoms, treatments, and management approaches.
Podcasts
A podcast by Cheryl Crow that features real patient stories, expert advice, life hacks, and more to help you take control of your health. Cheryl Crow is an occupational therapist and has been a rheumatoid arthritis patient for 17 years.
Dr. Paul Bird is a joint arthritis expert and he created this podcast to help you understand your arthritis better and to get the most out of treatment.
Two holistic health coaches share what it is like living with rheumatoid arthritis. They share tips, mindset practices, navigating a social life, running businesses, medications, and alternative healing modalities.
This podcast is hosted by VJ Hamilton who is a nutritionist, scientist, and autoimmune disease expert. She is the founder of The Autoimmunity Nutritionist Clinic and Complete Autoimmune RESET program. She uses this podcast to provide listeners with the most up-to-date research on autoimmune diseases.
YouTube
A YouTube channel run by Cheryl Crow. She uses this channel to share life hacks, tutorials, and how-tos that can help patients with arthritis. Her mission is to educate, empower, and inspire patients and providers.
National Rheumatoid Arthritis Society (NRAS)
The NRAS is the only patient-led charity in the UK for people with Rheumatoid Arthritis. This channel has educational videos on RA.
Ankylosing Spondylitis Resources
*Refer to resources listed in Resources for All Chronic Pain Conditions (listed at top of page) and Autoimmune Disorder Resources (near top of page).
Organizations
A UK-based organization comprised of healthcare professionals, researchers, carers, and supporters. They support world-class research. They provide resources such as a helpline, an online community, free education, and a 24/7 virtual assistant.
Spondylitis Association of America
An organization dedicated to working towards a cure for ankylosing spondylitis and empowering those who live with the disease. This organization supports innovative research and researchers while providing free education on ankylosing spondylitis.
National Axial Spondyloarthritis Society
A UK based organization that provides specialist support, advice, and the most up to date information. Their goal is to ensure that every person with axial spondyloarthritis receives a timely diagnosis and effective treatment.
Websites
A UK-based organization comprised of healthcare professionals, researchers, carers, and supporters. They support world-class research. They provide resources such as a helpline, an online community, free education, and a 24/7 virtual assistant.
An online community for people with chronic illnesses. People with chronic illnesses can share their stories and help others who are struggling with the same illnesses. This community has 3.5 million users and is still growing.
Books
“Mostly Cloudy with Some Bright Spells” by Juliette Wills
The author shares her story with ankylosing spondylitis and ulcerative colitis. She tells her story in a way that is funny, adventurous, and inspiring.
Podcasts
This podcast provides education on arthritis and other autoimmune disorders. It is run by Dr. Giana Girnita, a rheumatologist with over 20 years of research and clinical experience.
Life with Ankylosing Spondylitis
This podcast allows people with ankylosing spondylitis to share their experiences and stories with others. Created by Mykayla Innerst.
YouTube
Dr. Diana Girnita- Rheumatologist OnCall
A rheumatologist provides comprehensive health information for people with autoimmune disorders such as ankylosing spondylitis. Her motto is “You have a disease, but you are not the disease”.
Other
A U.S. news magazine that focuses specifically on spondyloarthritis. The magazine provides education on pain, fatigue, complications, the latest research, and treatment options.